Five women in black tops stand side by side outdoors, facing the camera with a calm sea and sky behind them, symbolizing patient-centered UTI research.

Alliance for Patient-centred UTI Research (APUR)

The Alliance for Patient-centred UTI Research (APUR) is a collaboration between a group of mission-driven enterprises and non-profit organizations working to improve the lives of patients.

Founded by Live UTI Free (IE), Chronic UTI Australia, CUTIC (UK), and Let’s Talk UTI (US);
APUR is a global alliance focused on quality of life and access to care for people living with urinary tract infection (UTI) by advancing the understanding and management of UTI through patient-centred research and education.

Urinary tract infection (UTI) affects around 404 million people (85% female) globally every year. We intend to change that.

Contact APUR

Collaborate With Us

Placeholder

APUR collaborates with organizations in the field of women’s health to improve the health and wellbeing of patients. Whether you are looking to engage our community, are seeking support for patient and public engagement, or wish to fund research that will change people’s lives, you’ve come to the right place.

Research participant recruitment, study management, patient involvement, education, and data-driven insights are our specialties, but there are many ways we can lend a helping hand.

Our alliance maintains strong connections with researchers, clinicians, and patients alike. We’re always happy to explore your interest in working with us, and look forward to hearing from you!

Get in Touch


Who We Are

Logo featuring a red and dark blue triangle alongside bold uppercase text reading "LIVE UTI FREE".
Live UTI Free is a patient and public involvement and engagement (PPIE), patient research, and advocacy organisation, and co-author of two validated patient reported outcome measures for recurrent urinary tract infection. Alongside leading research, Live UTI Free provides a wealth of free resources and educational materials to those living with recurrent and chronic UTI.
Black globe icon in the center of a white background with a blue rounded square border.Red rounded square icon with a white play button inside a rectangle, symbolizing the official YouTube logo.Instagram logo: pink square with rounded corners, featuring a central white camera icon.Facebook logo: blue square icon with a white circle and a lowercase blue letter f in the center.TikTok black and white logo with a musical note centered in a rounded square outlined in black.
Chronic UTI Australia Inc. logo, with the “O” in CHRONIC styled as a urine sample cup and a drop below it.
Chronic UTI Australia was founded in 2018 as Australia’s first and only national patient advocacy organisation dedicated to urinary tract infection (UTI). As a not-for-profit organisation, Chronic UTI Australia strives to have UTI added to Australia’s public health agenda by advocating for awareness, recognition, education, research and improved testing and treatment for all forms of UTI.
Watch our interview with Deirdre Pinto, co-founder of Chronic UTI Australia.
Black globe icon in the center of a white background with a blue rounded square border.Red rounded square icon with a white play button inside a rectangle, symbolizing the official YouTube logo.Instagram logo: pink square with rounded corners, featuring a central white camera icon.Facebook logo: blue square icon with a white circle and a lowercase blue letter f in the center.
Chronic Urinary Tract Infection Campaign logo with a circular orange and blue graphic and bold black text on a white background.
CUTIC is a not-for-profit organisation formed in 2016 by a small group of expert patients that works closely with clinicians, researchers, and other professionals. CUTIC strives to raise awareness about chronic urinary tract infections, challenge current tests which fail to diagnose a significant number of UTIs, gain official recognition and formal treatment guidelines for chronic UTI, and ensure that effective specialist treatment for chronic UTI is available to all.
Black globe icon in the center of a white background with a blue rounded square border.Facebook logo: blue square icon with a white circle and a lowercase blue letter f in the center.
A gold outlined U shape sits on the left, with blue text on the right saying "Lets Talk UTI" against a white background.
Let’s Talk UTI is a nonprofit organization dedicated to creating awareness, education, and community around urinary tract infections – the most diagnosed outpatient infection in the United States. We serve as a voice for change, supporting research and advancing education to transform UTI care.
Watch our interview with Deirdre Pinto, co-founder of Chronic UTI Australia.
Black globe icon in the center of a white background with a blue rounded square border.Facebook logo: blue square icon with a white circle and a lowercase blue letter f in the center.Instagram logo: pink square with rounded corners, featuring a central white camera icon.

Our Research

APUR’s first research collaboration was The Global UTI Project, which was conducted in 2024.

The results of this study enabled our research team to further refine the Recurrent Urinary Tract Infection Symptom Scale (RUTISS), the first fully validated patient-reported outcome measure for recurrent UTI.

Using data from our longitudinal 40-day Global UTI Project symptom tracking study, this research confirmed that the RUTISS can reliably detect changes in symptoms during treatment and establishes what a meaningful improvement looks like from the patient perspective.

The RUTISS and its accompanying quality of life measure, the Recurrent Urinary Tract Infection Impact Questionnaire (RUTIIQ), are now ready to use in clinical practice and clinical trials, putting patient voices at the center of intervention evaluation.

Read our open-access publication in the peer-reviewed journal Urology here (RUTISS) and Neurourology and Urodynamics here (RUTIIQ).

You can also read more about the RUTISS and its complementary Patient-Reported Outcome Measure (PROM), the RUTIIQ, at PAREDInsights.org.

More Research from APUR Alliance Members

Logo featuring a red and dark blue triangle alongside bold uppercase text reading "LIVE UTI FREE".
  1. The Recurrent Urinary Tract Infection Symptom Scale: Responsiveness to Antibiotic Treatment and the Minimal Clinically Important Difference
  2. Evaluating the quality of life impact of recurrent urinary tract infection: Validation and refinement of the Recurrent UTI Impact Questionnaire (RUTIIQ)
  3. Multi-Platform analytics integration for clinical trial Recruitment: A digital health informatics implementation framework
  4. Psychosocial burden and healthcare disillusionment in recurrent UTI: a large-scale international survey of patient perspectives
  5. Public interest in online information on recurrent UTIs is greatest for information with the poorest publication quality
  6. Living With and Managing Uncomplicated Urinary Tract Infection: Mixed Methods Analysis of Patient Insights From Social Media
  7. Using the Working Model of Adjustment to Chronic Illness to explain the burden of recurrent urinary tract infection: A survey-based study
Chronic UTI Australia Inc. logo, with the “O” in CHRONIC styled as a urine sample cup and a drop below it.
  1. Hearing Patient Voices – Chronic UTI Survey Report

Join the Alliance!

We’d love to hear from UTI education, research, and advocacy organizations in other regions, so please get in touch:
Contact APUR